- After the doctor reviews the treatment plan with you, and all of your questions have been answered, you will be asked for your permission to begin your child's treatment. This is called giving parental permission or informed consent.
- You will be asked to sign a form that describes the treatment. This form lists the risks and benefits of the treatment and what other treatments may be available.
- Signing the form means that you understand what the doctor has explained to you and that you agree to have treatment started. You will receive a copy of the form for your records. It is important to keep it in a safe place.
- Although you agree to a clinical trial, you have the right to withdraw and your child will continue to receive the best possible care.
- If your child is old enough to understand, he or she may also be asked to agree with the treatment plan, When a minor (a child less than 18 years old) agrees with the plan, the child is giving assent. A doctor or nurse will help explain the treatment plan to your child in words that he/she can understand.
- Informed consent does not stop after you sign the form or start treatment. Every day in the hospital or at each clinic visit, your doctor or nurse will talk with you about the plan of care and may adjust the care to your child’s needs. This is your chance to ask questions and to raise issues that might alter the plan. At all times, your child’s health is the top priority..
Catherine Bourne, RN, BHSc(N) Barbara Pugh, RN, MS Margaret Hussong, RN, MS, PNP Elizabeth Gilger, MSN, RN, CPON, CPNP
Reviewed and Edited by the CureSearch.org Editorial Board
February 2006