Your Vote Can Win CureSearch $75,000!

From now through June 19, make your vote count! DSW has selected 8 organizations, including CureSearch, to compete for a grant of $75,000. All you have to do is visit DSW’s Facebook Fan Page on your computer and vote for CureSearch. Be sure to sign on and vote EACH DAY!

DSW

Helping Parents Understand Lumbar Puncture

The following video demonstrates a lumbar puncture in a child undergoing cancer treatment. A lumbar puncture, also called a spinal tap, is an image-guided procedure performed on the lower back, which removed fluid that surrounds the brain and spinal cord to examine it for cancer cells or infection. A lumbar puncture may also be performed to inject medication into this the spinal column. Children and adolescents are usually given anesthesia or sedation before a lumbar puncture is performed.

This video was designed to educate parents and caregivers by showing an actual patient being accessed for treatment. Our intent with this video is to help you, and your child if you chose to show it to them, understand what will happen when your child has this procedure.

 

Lumbar puncture

Event Organizers Receive C.H. Robinson Hero Award

MJ Golf Classic Raises $415,000 for Children’s Cancer Research

Event founders, Mo and Jim, were surprised and honored to be presented with the C.H. Robinson Hero Award for their years of hard work and dedication. The first C.H. Robinson Hero Award recognizes those C.H. Robinson employees or branches that have made a significant contribution, through charitable giving, events, or unique activities, to the communities in which they work and live. CureSearch is proud to stand in partnership with Mo and Jim as we work to accelerate the search for cures.

On April 19-20 more than 400 people gathered for the annual MJ Golf Classic! The event, now in its 13th year, raised more than $415,000 for children’s cancer research. Attendees enjoyed three rousing rounds of golf at the Jay Morrish Golf Course at Champions Circle as well as a kickoff bash with the popular Texas hold ‘em poker tournament at the Texas Motor Speedway on Friday night.

This year, participants once again had the opportunity to take part in the Texas Driving Experience, where professional racing instructors give attendees an inside look into the sport of road racing. Traveling at more than 160 miles per hour, 200 riders experienced the thrill of the ride from the front seat of a race car.

Read more… 

My brother. My hero.

This guest blog post by Kelli Very Wright

Ben and KelliWhen you hear childhood cancer, you think babies. toddlers. middle school.  I hear childhood cancer and think teenager. college. brother.

I came home for Thanksgiving break in Fall 2004, and my mom told me my brother Mike, a 17 year old freshman in college, had osteosarcoma, a childhood cancer.  I didn’t know what that meant at the time.  Didn’t know the words mediport, methotrexate or dilaudid.  Didn’t know he’d go through 18 rounds of chemo, two thoracotomies, and an implant surgery (from his femur to shin, including his knee), all before he turned 19.

It’s an interesting place to be, the sibling of a “child” with cancer.  All attention, all the time is no longer on you. Not only from your parents, but from family, friends, neighbors, everyone. If you have a slight fever, it means taking it easy and resting.  If your sibling with cancer has a slight fever, off to the hospital they go, with the possibility of being admitted and not coming home for a few days.  Your life changes.

I consider myself lucky – I was 20 years old and in college when Mike was in treatment.  My parents were able to devote all their time and energy on him.  Mike came first, and I wouldn’t have had it any other way.  I did stay in the hospitals during/after his surgeries, had to wear a mask at home so I didn’t sneeze and share germs and I definitely played shofer to and from the hospital.  But nothing compared to what my brother endured.  He showed me courage and strength I’d have to dig deep to find in myself.

I am thankful every day that Mike is now eight years cancer free.  He graduated from college [only one year late]; became a paramedic [his dream]; and continues to be a volunteer firefighter.  And just recently, Mike became a member of the New Jersey Disaster Medical Assistance Team (DMAT) – medical personnel designed to provide medical care during a disaster or other event [this is not an easy accomplishment].

The battle doesn’t end when treatment does.  There will forever be check ups, long-term effects and tearful times when friends met along the way don’t make it.  So every year we have a party to celebrate life; family and friends from all over the East Coast come to raise a glass to Mike.

Some people never meet their hero, my brother is mine.

At-Home Drug Errors Common for Kids With Cancer, Research Shows

Study author says parents need more support, better awareness

FRIDAY, May 3 (HealthDay News) — Children with cancer often have complex medication regimens — sometimes as many as 20 drugs a day — that they take at home, and mistakes are common, a new study finds.

Errors often occur when parents don’t understand how to give the drugs, but mislabeled bottles and wrong prescriptions are also to blame, researchers say.

“Parents of children with cancer make many mistakes giving their children critical medicines, including chemotherapy at home,” said lead researcher Dr. Kathleen Walsh, of the departments of pediatrics and medicine at the University of Massachusetts School of Medicine in Worcester.

Read more…

Helping Parents Understand Port Access

Many tests and procedures are done to during cancer treatment to administer medication and see exactly where cancer cells are located inside the body. The following video demonstrates two types of port access in patients receiving chemotherapy.

This video was designed to educate parents and caregivers by showing actual patients being accessed for treatment. Our intent with this video is to help you, and your child if you chose to show it to them, understand what will happen when your child has this procedure.

Click here to learn more about central lines and to view our port access demonstration.

Top Ten Fundraiser Ideas

Looking for a fun way to raise funds for CureSearch? Below are some unique fundraising ideas that you can use to help CureSearch fund innovative and targeted research.

1.Bake Sales: bake sales are an easy way to raise money for your CureSearch Walk team. Gather up your team mates and have everyone bring a baked good!

2.Coin Collection: create some healthy competition between classrooms at your child’s school. Whoever collects the most change wins a fun prize for their whole class!

3.Food fights: always wanted to have a food fight, but afraid you were going to get in trouble? Pick an outdoor spot, gather your friends (and some towels) for a food fight to benefit your CureSearch Walk team! Ask participants to make a donation to CureSearch to join in on the fun. Everyone will have fun and raise funds for children’s cancer research.

4.Corporate Sponsors: do you know a business owner, local vendor, or corporation in the local community who would like to get more involved in the CureSearch Walk and gain community exposure? Ask them to sponsor your team or Walk! When they do, they will get their logo on your t-shirt or on your local CureSearch Walk website.

5.Big game/ Show/ Event night: show the super bowl, favorite college or professional team game, Olympics, Reality Show Finale, etc. Ask your friends to donate $20 to attend. You can then also play games like guess who will win, score the most points, or who will get kicked off and charge a participation fee for each entry.

6.House Warming, Bridal Shower, or Birthday: throw yourself or a friend a party and ask for donations to CureSearch in lieu of gifts.

7.Movie Night: pick up the hottest new release and have friends over to watch. You could even rent a projector to show it on a wall or outdoors during the summer. Admission is a donation to CureSearch!

8.Dinner/ Cocktail/ Wine and Cheese Party: throw a fancy party and charge guests a fee for attending. Try to have items donated or plan on a budget so you can donate as much possible to CureSearch!

9.Game Night:  this can be anything from basketball to Monopoly to PS3 to poker.  Charge an entrance fee and give 30-50% to the winner and the rest to CureSearch.

10.Zumba-thon: be healthy while you raise funds for CureSearch! Have participants ask their friends and family to make pledges for every hour they zumba.