Bronies for Good

Bronies for Good started when a group of Bronies, fans of the show My Little Pony: Friendship is Magic, decided that they wanted to help people in their community. They created an organization that was committed to fostering the growth of a global community of caring, socially conscious individuals through the organization of service events worldwide. Their first project was a month-long, community wide blood drive in 2010 called “Nurse Redheart’s Roundup.” After the success of this event, the group put together many successful events like toy drives and charity albums in the years that followed. What started as a small way to engage their community, turned into an international operation partnered with organizations concerned with gender equitable education and international development, such as Room to Read and Your Siblings.

This year, the Bronies for Good were looking for a way to give back to children with cancer and found that CureSearch for Children’s Cancer’s approach to funding innovative research and helping in the community matched their vision. When BronyCon 2013, a convention held for fans of the cartoon My Little Pony: Friendship is Magic, came to Baltimore, Bronies for Good decided to pair a charity auction with the event. The auction had more than 90 items from autographed Pony paraphernalia, custom crafts, art, and more. The audience of more than 2,000 fans helped raise $23,000 for CureSearch to support research in children’s cancer.

Because of organizations like Bronies for Good, CureSearch is able to continue to fund innovative and critical research, so that one day every child will be guaranteed a cure. To learn more about other organizations who are joining the fight against children’s cancer, click here.

“If I could do one thing, I would cure cancer.”

This Mom Goes MOM on Cancer

Christy Jones 2

When Christy’s son Gavin was 9-years-old, he was diagnosed with a germinoma brain tumor that was the size of an orange. After his diagnosis, he underwent surgery to remove the tumor, followed by chemotherapy and radiation. When Gavin was diagnosed, Christy’s heart broke; she couldn’t believe that they had found a tumor in her son. “Gavin was amazing he took everything so well, telling me, ‘it’s good Mom. They found what is wrong with me and I will be fixed and you don’t have to worry anymore,’” says Christy.  She took that spirit with her throughout treatment, trying to remember that if her son could handle it, so could she. No matter what, they were going to Go MOM on Cancer.

Treatment was terrible for the family; Gavin had trouble remembering simple tasks, and would be in immense amounts of pain, with no way to communicate it. “Watching your son get sick over and over and over again having no way to make him feel better at all,” says Christy. “That is my job – being a mother and taking care of him, and making him feel better. I couldn’t help him, I hated it.” She became an advocate for her son, looking for ways to comfort him during treatment, and ways to help him thrive now that he is cancer free.

Now three years cancer free, Christy and her family began looking for a way to help Gavin and others like him. They came across the Kansas City CureSearch Walk, and immediately signed up. They loved the sense of community that the Walk had, and can’t wait to return next year. “Walking for a purpose was great. It was amazing to see all the people come together to walk for a cure,” explains Christy.

Christy fought hard for her son throughout treatment and now she continues to Go MOM on Cancer, so that other moms don’t have to watch their children suffer.

“If I could do one thing in the world, I would cure cancer,” she says.

Go MOM on Cancer Launches September 1

MOM. It’s Not Just a Name. It’s a Verb.

Go MOM on Cancer

Who’s your favorite mom? Think about that for a minute.

Think about how she is, or was, with her kids. She is their teacher, playmate, disciplinarian, safety blanket, and best advocate. And, you know the difference between when she is MOMMY and MOM, right? When she’s in “MOM mode” and advocating for her children, you don’t really want to mess with her. After all, she is relentless, fighting hard, and sacrificing anything to help her children.

Well, this September during Childhood Cancer Awareness Month, at CureSearch we’re taking that “MOM mode” and making it into a verb. Because whether you’re a mom, a dad, a grandparent, sibling, doctor, friend, or anyone else who loves, or has loved, a child with cancer, you know that it’s that MOM energy that is required in the pursuit of cures.

So join us, and Go MOM on Cancer. Follow this link to learn more.

Meet the Children: Bree Lena Town

Bree Town for blog

What started as a suspected strep throat ended up being much more than that for Bree Town and her family. After her mother mentioned bruises, her doctor ordered blood tests. The results were not what the family expected. Bree was diagnosed with Acute Myeloid Leukemia (AML) when she was just 8-years-old, and was ordered to check into the hospital immediately.

Treatment was not easy for Bree. She suffered from numerous infections which caused her to be in isolation for 8 months. She was in constant pain, some days it was so bad, her family wasn’t sure she would make it. Luckily, Bree proved stronger than the cancer and successfully completed treatment in November.

Bree was able to return to school in February and is thriving. Though she has to get testing done to monitor any side effects of the treatment, she is glad to be getting back to normal. This summer, she and her family have been spending their time swimming, doing arts and crafts, and enjoying time outside.

To meet more amazing children who are battling cancer, use this link.

Child Life Specialist Webinar Offered

Are you a Child Life Specialist Looking for Additional Resources?

CureSearch for Children’s Cancer is pleased to provide a series of webinars for Child Life Specialists, made possible by a grant from Ronald McDonald House Charities. The last webinar in the series will take place on October 23 and will include information on pain management and palliative care.

Effectively using Pain Management and Palliative Care in Children’s Cancer Treatment
October 23, 2013
Techniques to address treatment anxiety, introduce pain management, and incorporate alternative methods of pain management

Pain management and palliative care are an essential part of the treatment process for most children’s cancer patients. In this webinar, experts will discuss distraction techniques for managing pain, the physiological responses in the body that cause pain, how to approach procedure anxiety, talking with parents about pain management and palliative care, and how alternative methods of pain management can be incorporated into a treatment plan. A guideline for care will also be presented that will ensure that the entire medical team is involved in a patient’s pain management and palliative care plan.

Use this link to register.

To view recordings of webinars from the rest of the series, visit curesearch.org/Child-Life-Specialist-Webinars/

Get Involved with CureSearch!

Looking for a way to get involved with CureSearch? There are many ways to get involved, from taking the ultimate challenge with Ultimate Hike, forming a CureSearch Walk team, advocating, or getting your company involved!

At CureSearch for Children’s Cancer, we are fighting for the future every child deserves and every parent dreams of. That is why we support children’s cancer research that seeks to solve the most challenging problems; annually funding clinical trials and scientific research questions that push the field closer to a cure, so that one day, every child is guaranteed a cure. That’s why we need your help!

Join CureSearch this fall for one of our local events, or click here to find other ways that you can make a difference in the lives of those battling cancer.

Little Girl Inspires Des Moines Walker to Make a Difference

ChasityandTaylor-Web

Chasity Huffman fell in love with Taylor the second she saw her picture and read her story on Facebook. She knew immediately that she had to do something for the little girl who was battling stage III neuroblastoma. Being a parent herself, she couldn’t imagine what it would be like to watch your child go through chemotherapy, antibody therapy, and take too many medications to count in the hopes that they would help her fight cancer.

While she had never met Taylor, Chasity knew children’s cancer was a cause she wanted to support. So, she began looking for an organization to get involved with and found out that the Des Moines CureSearch Walk was taking place in May, near where Taylor and her family lived. She signed up, started recruiting friends and raising funds right away.

Her team, named Walking 4 Miss Taylor, organized unique fundraisers in their community such as a jewelry sale, water color sale, and even an event involving goats! By the time the Walk came around, Chasity was sure that her team would be number one, and that Taylor would get to lead the survivors as they walked with their CureSearch banner.

Read more…