CureSearch for Children's Cancer funds and supportstargeted and innovative children's cancer research with measurableresults, and is the authoritative source of information and resourcesfor all those affected by children's cancer.
More than 200 advocates – past and present patients, families, and caregivers - gathered on Capitol Hill on Tuesday, June 5th to encourage their Senators and Representatives to support essential legislation for children's cancer research, improved access to medications and survivorship programs.
Hosted by the Alliance for Children's Cancer, of which CureSearch is a member, more than 200 advocates from across the US came together on one day to make the biggest impact possible for children's cancer.
Families like the Mitcheltrees of New Jersey traveled to DC to fight for their “little loves.” The Mitcheltrees are no strangers to the children's cancer community. Their son Duncan was diagnosed with stage III Wilms tumor at age 2 ½. Eric and Andrea Mitcheltree made Childhood Cancer Action Day a family affair, bringing along their 8-month old daughter Riley, 4-year old son Duncan, and 6-year old daughter Reagan. It was their first venture to the Hill, and they are officially hooked. Each of the legislators or staffers they met with was receptive to their messages, with 3 out of the 4 already signed on to the Creating Hope Act, an act designed to generate market incentives for drug development through the establishment of a priority review voucher for pediatric rare diseases, including pediatric cancer. Andrea Mitcheltree, Duncan's mom, isn't giving up on the fourth representative - she says she'll be coming back to the Hill until proper funding and support is given to children's cancer.
Children's Cancer advocates also spoke with their Senators and Representatives to urge them to join the Congressional Pediatric Cancer Caucus, formed to serve as a clearinghouse for information on pediatric cancer and a forum to aid Members of Congress in working together to address pediatric cancer. The Childhood Cancer Survivorship Act was also at the forefront of Childhood Cancer Action Day. This act will provide resources to fund research and survivorship programs to improve the quality of life for all childhood cancer survivors.
As the day ended, advocates left the Hill with a sense of accomplishment, knowing that they had voiced their concerns for children with cancer and that those concerns were heard.
Join CureSearch as an advocate for children's cancer by appealing to your representative to make a difference in the lives of the 13,500 children diagnosed each year with cancer. Learn how by signing up to become a CureSearch advocate.
Christine BorkEmail Christine(240) 235-2208